mommy and tman at newport
older pic, but a fav.. go buckeyes!
I JUST WANNA EAT HIM UP!!Wednesday, November 3, 2010
just adding more pics!
mommy and tman at newport older pic, but a fav.. go buckeyes! I JUST WANNA EAT HIM UP!!
IS THIS WEEK OVER YET!!!!
Summer fun at the zoo
Daddy and Tman in the lake
Mommy and Tristan
I PICK THIS PUMPKIN MOM!What a week its been and its only Wednesday!
Lets see, where to catch up.... lets start..
Monday we got a phone call from neurology about Tristan's last set of blood work done. His seizure med levels came back good. But his red blood cell count is off. Tristan has now been diagnosed with microsytic anemia. Which means his red blood cells are smaller than they should be. That they havent been "growing" with his body. So now we are going to start him on an iron vitamin and redo this blood works in a few months and fingers crossed it works!
Today, we saw Dr. Vargus-Adams in Cinci who has been following Tristan for about a a year and a half now. She is a Cerebral Palsy doctor. The first words out of her mouth was about Tristan's last hip xray. We have been doing routine hip xrays for the past few years as well. His left hip has always been "not right" and today we found out that its pretty dang close to being dislocated! AHH! So long story short, we will be seeing one of the favored and top orthopedic surgeons in Cinci in the next week hopefully, and Tristan will def be having his first surgery sometime before Christmas to get his hip fixed. I will let ya know how that appt goes and when surgery will be. :( Because of his spacisity in his legs we started him on Bacclofen tonight. This is a med that will help reduce his spacisity in his legs and the rest of his body. This is to help his muscles to stop pulling on his hips. My plan is to get him off this med after he has surgery. With this med we do run the risks of having seizures. So fingers crossed we dont!
Good news! Tristan weighed in a lil over 30lbs today! So he is finally putting some weight on again. And he finally got his flu shot, so I dont have to worry about that now! We are also going to see a new Hollistic Health team at Cinci Childrens this friday. So hopefully no more bad news this week from that. He will also be receiving a deep tissue massage, poor kid really needs it, and so does mommy! lol
Tristans seizures are still sticking around ( I think) he had his last episode a few weeks ago. Its just so hard to read his actions sometimes if they are seizures or not. Especially sense his seizures normally come in clusters and not just one. But the kid likes to keep us on our toes so you just never know! His 4paws dog can not come soon enough!
Otherwise, Tristan has been doing great. He is getting better with his new communication device. Which we are really hoping to start taking to school for him soon. He is getting the concept of activating the switch to make his "talker" talk to get what he wants. He is getting stronger everyday. I love hearing his therapist praise him for doing so well, and amazed at what he is doing :) its the best feeling for both Tristan and I.
Once again, Tristan will be receiving his 4paws seizure alert/mobility dog FEB 1st! We will be in training with tristan and the dog from the 1st till the 11th. wahoo!
Well<> I am going to work on getting new pics up, so enjoy! feel free to email us anytime! CRentz3@yahoo.com
Thanks everyone for your thoughts and prayers!
Lets see, where to catch up.... lets start..
Monday we got a phone call from neurology about Tristan's last set of blood work done. His seizure med levels came back good. But his red blood cell count is off. Tristan has now been diagnosed with microsytic anemia. Which means his red blood cells are smaller than they should be. That they havent been "growing" with his body. So now we are going to start him on an iron vitamin and redo this blood works in a few months and fingers crossed it works!
Today, we saw Dr. Vargus-Adams in Cinci who has been following Tristan for about a a year and a half now. She is a Cerebral Palsy doctor. The first words out of her mouth was about Tristan's last hip xray. We have been doing routine hip xrays for the past few years as well. His left hip has always been "not right" and today we found out that its pretty dang close to being dislocated! AHH! So long story short, we will be seeing one of the favored and top orthopedic surgeons in Cinci in the next week hopefully, and Tristan will def be having his first surgery sometime before Christmas to get his hip fixed. I will let ya know how that appt goes and when surgery will be. :( Because of his spacisity in his legs we started him on Bacclofen tonight. This is a med that will help reduce his spacisity in his legs and the rest of his body. This is to help his muscles to stop pulling on his hips. My plan is to get him off this med after he has surgery. With this med we do run the risks of having seizures. So fingers crossed we dont!
Good news! Tristan weighed in a lil over 30lbs today! So he is finally putting some weight on again. And he finally got his flu shot, so I dont have to worry about that now! We are also going to see a new Hollistic Health team at Cinci Childrens this friday. So hopefully no more bad news this week from that. He will also be receiving a deep tissue massage, poor kid really needs it, and so does mommy! lol
Tristans seizures are still sticking around ( I think) he had his last episode a few weeks ago. Its just so hard to read his actions sometimes if they are seizures or not. Especially sense his seizures normally come in clusters and not just one. But the kid likes to keep us on our toes so you just never know! His 4paws dog can not come soon enough!
Otherwise, Tristan has been doing great. He is getting better with his new communication device. Which we are really hoping to start taking to school for him soon. He is getting the concept of activating the switch to make his "talker" talk to get what he wants. He is getting stronger everyday. I love hearing his therapist praise him for doing so well, and amazed at what he is doing :) its the best feeling for both Tristan and I.
Once again, Tristan will be receiving his 4paws seizure alert/mobility dog FEB 1st! We will be in training with tristan and the dog from the 1st till the 11th. wahoo!
Well<> I am going to work on getting new pics up, so enjoy! feel free to email us anytime! CRentz3@yahoo.com
Thanks everyone for your thoughts and prayers!
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