Seizure Meds

Tristan painting pumpkins today!

Hello!

What an exciting few weeks. Tristan is finally getting over Whooping Cough. He is still coughing some, mainly when he laughs or starts crying.

We had an appointment Thursday with his neurologist in Cinci, and we are going to start weening him off his Topomax. That is one of his two seizure meds. Things are going good so far. He said the first week would be crucial, because his levels will begin to drop. We are praying for no seizures! I feel in my heart though that he is good to go.

Tristan is also not attending school right now. Due to his Whooping Cough his body is still not 100% up to par. And with all the H1N1 going around, we are not risking anything. His pediatrician agree with us also. Soo Tristan will not be going back to school to probably after the first of the year is my goal. Just need people to start getting healthy!

Tristan is doing great otherwise. This week we will begin doing physical therapy twice a week with Bobbi at URS, once on "land" and once in the pool. We are also hoping to start doing OT twice a week now. Our insurance company is approving more sessions now.

We have also started what I call "computer game therapy" in Cincinnatii with the Perlman Center. Beth is our therapist. She is great. She is very possitive, and is good with Tristan. We went last week for our first time. She made us a CD-Rom with adapted computer games for Tristan to do at home. It also features storybooks using a powerpoint program. Its hard to explain but its really neat, and Tristan loves it.

Overall, Tristan is doing great. We are keeping really busy with all this therapys and starting new therapys. Therapy is officially me and Tristan's life anymore. But it is what he needs, and he enjoys it ( most of the time) and I got to do whats best for him!