We have been SEIZURE FREE FOR A YEAR NOW!!!

Wow, Long time no post! Life has been crazy!
Lets see, where to start.
Well, Tristan had a great Christmas! As always he got too much. Got some neat therapy toys and a large nubby peanut ball which is awesome! He also received over $150.00 worth of McDonald's gift cards. This is because every time he has a good day in therapy with little or no tears I take him to get a Sweet Tea. The boy loves his sweet tea!
Over Christmas break Tristan had a barium swallow x-ray done ( they watch him swallow this chalky drink under an x-ray) and found out he COULD be microaspirating. We had this test done because Tristan's pulmonologist recommended it due to all the coughing he was still doing since September! For now, we are having to thicken any thin liquids ( water, juice, tea) to a nectar consistency to help prevent aspiration. Though I feel the test they did was not a good one because of how he was sitting, we are re-taking this test the end of March. We will see what they say from there. He is doing good with the thickened beverages. It took him awhile to get use to the new texture at first.
Otherwise Tristan is doing great. He has been back to preschool. He is loving it. He has a whole class full of "new girlfriends". I never knew my little boy would be such a ladies man!
We are still doing therapy all the time it seems. We are going to Cincinnatii still to see Mrs. Beth for a computer game/recreational therapy. She is also helping us to get Tristan's stroller where it needs to be for him.
His therapies at URS are going great as well. He is doing an ESTEM therapy now with Bobbi. She places 4 electrodes ( 2 on each calf) that send electrical impulses into Tristan's leg muscles. This helps his feet to be flat while he is walking and standing. This also helps knock out some of his tone and aides in him using the "right" muscles for these tasks. Its really neat! We are actually going to be getting a home unit here in the next week or so. ESTEM makes such a difference with Tristan's legs once a week, I can not wait to see how much it helps getting to use it at home as well. Tristan has also been working on a walker/gait trainer with Bobbi. He is doing a great job. He made it across the therapy gym a few weeks ago ( with help) because Mrs. Bobbi said he could have some icecream if he made it all the way! His little legs were shaking by the time he made it across but he did it! + got his icecream!
We are still doing hydrotherapy as well ( in the pool). We also started with Mrs. Annie, she is an Augmentative Communication Therapist at URS. She has been working with Tristan and switches. We have begun the process of looking at different communication devices for Tristan. We should be ordering one in the next few months! Tristan continues to have therapy at URS 3 days a week, therapy at school 3 days a week, and then going down to Cinci. He is staying very busy but you can see the improvements in him weekly.
He is now holding his head up better and for longer periods of time. He is tolerating being in the prone (belly) position longer also. He has also learned how to push a ball around on a table or bench. He has become much more vocal. Tristan is doing great. Tristan is a little miracle, and with the struggles of daily life he still always has the biggest smile and love for everyone. Keep praying for him to stay healthy and keep getting stronger.
Also! I have so many new pictures to post on here but I can not find my camera at the moment! As soon as I do I will post them. I am also going to work better to keep this updated at least once a week. Be sure to save it as a favorite or sign up to receive an email everytime I update!